In this issue of Capitol Connection, an update on Congressional action regarding the debt ceiling and new legislation is provided. In addition, find some highlights from the Disability Policy Seminar and Autism Acceptance Month. New alerts and sample letters are now posted on our Action Center to help educate Members of Congress on legislation introduced in Congress. 

Debt Ceiling Bill

The House of Representatives narrowly passed a bill called the Limit, Save, Grow Act on April 26th. The bill aims to raise the government’s debt ceiling for one year in exchange for significant cuts to programs important to people with Autism that would be locked in place for the next decade. This includes work requirements for Medicaid that could result in millions losing access. The work requirements apply to all Medicaid pathways, including for those on Supplemental Security Income (SSI) and home and community-based services (HCBS) waivers. People with disabilities would need a doctor or other medical professional to deem them “physically or mentally unfit for employment” to be exempt from the work rules.

The Autism Society issued a statement following the House vote urging Congress to lift the debt ceiling and negotiate the country’s spending priorities through the regular budget and appropriations process. Thanks to those who contacted their Representatives to educate them about the impact of these cuts. Please use the updated Action Alert to educate Senators so that this bill is never signed into law.

To help advocates understand current threats to Medicaid and other disability programs, the Consortium for Constituents with Disabilities created a special resource page on Protecting Medicaid and Essential Programs. Resources include fact sheets on proposed work requirements and Medicaid cuts. In addition, CCD updated its resource page related to the Public Health Emergency wind-down. 

Disability Policy Seminar

Tracey Staley, Autism Society of America’s Board Chair introduces Senator Casey

Autism Society of Northern Virginia poses with Senator Kaine

The Autism Society co-sponsored the annual Disability Policy Seminar last week. Approximately 300 people participated in the virtual training on Monday followed by Capitol Hill visits on Thursday. Ten Members of Congress 

participated in the Capitol Hill breakfast to greet and speak with participants. They were Senators Casey (D-PA), Kaine (D-VA), Wyden (D-OR), Hassan (D-NH), Murphy (D-CT), and Representatives Beyer (D-VA), Molinaro (R-NY), Bonamici (D-OR), and Wright (R-TX). For those unable to join, the Autism Society will be creating a toolkit to help affiliates make their Hill visit virtually or in their home districts.

New Legislation 

Direct Support Workforce Bills

On April 26th, Senator Kaine (D-VA) reintroduced the Supporting Our Direct Care Workforce and Family Caregivers Act (S. 1298), a bill that would authorize grants through the Administration for Community Living to support the recruitment, training, and retention of direct care workers and family caregivers. Co-sponsors of the bill are Senators Bob Casey (D-PA, Kirsten Gillibrand (D-NY), Maggie Hassan (D-NH), Jack Reed (D-RI), Tina Smith (D-MN), Sheldon Whitehouse (D-RI), and Ron Wyden (D-OR).

On April 27th, Senators Hassan and Susan Collins (R-ME) and Representatives Brian Fitzpatrick (R-PA) and Joe Morelle (D-NY) introduced the Recognizing the Role of Direct Support Professionals Act (S. 1332/ H.R. 2941), a bill that would require the creation of a standard occupational classification for direct support professionals.

Autism Family Caregivers Act

On April 27th, World Autism Day, Representatives Grace Meng (D-NY), Brian Fitzpatrick (R-PA.), Henry Cuellar (D-TX), and Marc Molinaro (R-NY) reintroduced the bipartisan Autism Family Caregivers Act. An identical bill was introduced in the Senate by Senators Bob Menendez (D-NJ) and Susan Collins (D-ME). The legislation authorizes the establishment of a five-year pilot program to award grants to nonprofit organizations, community health centers, hospital systems, or a consortium, to provide evidence-based caregiver skills training to family caregivers of children with Autism and other developmental disabilities or delays.

Administration Updates

Caregiving Executive Order

President Biden singing the Executive Order with Disability Advocates

On April 18th, the Autism Society of America joined President Joe Biden at the White House as he signed an Executive Order to improve care for working families and support professionals caring for individuals with disabilities. The Executive Order directs the Department of Health and Human Services to issue several regulations and guidance documents to improve the quality of direct support professionals (DSP). This includes leveraging Medicaid funding to ensure there are enough home care workers to provide care to people with disabilities enrolled in Medicaid; test new models of respite care; target its grants to provide accessible, affordable child care; and taking steps to increase the pay and benefits for Head Start teachers and staff, among other actions.

Proposed “Access Rule” to Improve Medicaid Services
The Centers for Medicare & Medicaid Services (CMS) working with the Administration for Community Living (ACL), published a proposed rule, Ensuring Access to Medicaid Services (Access Rule) to improve access to — and quality of — Medicaid services and promote health equity across the Medicaid program. The proposed rule applies to all Medicaid services, including home and community-based services (HCBS). The Autism Society will be submitting comments. Comments must be received by July 3rd, 2023. The proposed rule strengthens many aspects of Medicaid HCBS, including the direct care workforce, health, and safety protections. This action is related to the President’s executive order on caregiving and services mentioned in the previous article.

IDEA Annual Report  

The United States Department of Education released its 44th annual report on the implementation of the Individuals with Disabilities Education Act (IDEA). This report is required annually by Congress for the Department to inform them of the progress being made to implement IDEA. The report includes state-by-state data on individuals served under IDEA, their characteristics, settings, exits, disciplinary removals, and legal disputes. The report found that students with Autism served under IDEA have slightly increased for every age group. To find specific data on your state, look through section 2 on page 83. 

Office on Civil Rights Annual Report

On May 1st, the Department of Education’s Office on Civil Rights (OCR) published its annual report for FY 2022. OCR’s mission is to ensure equal access to education and to promote educational excellence across the nation through the vigorous enforcement of civil rights laws. Among its findings in FY 2022, OCR resolved the second highest number of investigations in its history – 16,515 cases—while processing the highest volume of complaints in our history – 18,804 complaints; initiated an unprecedented and targeted 100 proactive compliance reviews; published 7 sets of resources and guidance addressing sex discrimination and disability rights; provided 186 technical assistance presentations; responded to 633 inquiries and 826 FOIA requests; collected civil rights data with a 100% reporting rate from required submitters; revised the Complaint Processing Manual to clarify its processes and added a new tool to help manage the caseload and meet complainants’ and recipients’ interest in efficient resolution.

CDC Expands the ADDM Network 

The Centers for Disease Control and Prevention (CDC) announced in March that the Autism and Developmental Disabilities Monitoring (ADDM) Network, which tracks the number and characteristics of children with Autism, is expanding. The funding to support the expansion comes from the Fiscal Year 2023 Appropriations. Five new sites will become a part of the network, including sites in Arizona, Indiana, Pennsylvania, Austin Texas, and Laredo Texas. In addition, four existing sites will expand to track transition planning and co-occurring conditions among 16-year-olds with Autism. For more information, visit the CDC ADDM website. 

President’s Committee on IDD

On May 1st, the President’s Committee on Intellectual and Developmental Disabilities (PCIDD) held its first meeting of the year. The Autism Society attended virtually. During the meeting, the committee heard back from workgroups related to the direct workforce crisis and community-based services, employment, emergency management, and other federal support programs. Self-advocate committee members provided compelling testimony on the unmet needs of those with IDD. PCPID is an advisory body that promotes policies and initiatives that support independence and lifelong community inclusion. 

Autism Acceptance Month 

Kris Steinetz from the Autism Society of Iowa poses with Governor Kim Reynolds

President Biden declared April 2nd as World Autism Awareness Day. In his proclamation, he calls for more support for community living and employment for those with Autism in America, along with bringing more awareness to help with early identification. The President also mentioned Kevin and Avonte’s Law which was reauthorized last year. Many Governors across the country also proclaimed April as Autism Acceptance Month.  

Kris Steinmetz from the Autism Society of Iowa had a proclamation signing with Iowa Governor Kim Reynolds to declare April as Autism Acceptance Month. In addition, 13 other Governors and two districts/territories declared April as Autism Acceptance Month. Thanks to those state advocates who helped to make this happen 

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The legislation makes across-the-board cuts of at least $142 billion (or 9 percent) for critical government programs. If defense and veterans programs are not included, then the cuts will climb to 22 percent or higher for non-defense discretionary programs. This would result in loss of access to child care, education, employment, housing, food assistance, and longer wait times for Social Security. The legislation further seeks to lock in those cuts for the next 10 years. It also includes a drastic cut to Medicaid (approximately $100 billion by some estimates) and increases work requirements for those eligible for Medicaid.

Christopher S. Banks, President and CEO of the Autism Society of America states, “While it is appropriate for Congress to cut wasteful spending, using the debt ceiling to extract cuts to services for individuals with Autism and families is cruel, wrong and unjust. At a time when families are suffering from insufficient supports and services, Congress should be looking for ways to expand support, not cut it.”

The Autism Society of America signed on to a letter along with more than 160 other disability and aging organizations urging Congress to not make cuts to Medicaid. The organization also issued an Action Alert urging our families to educate their Members of Congress about the harm such cuts would have on families.  

The Autism Society of America urges Congress to lift the debt ceiling without conditions and negotiate budget priorities through the regular budget and appropriations process.

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Affordable, accessible, quality child care and respite services are essential to give families the support they need. The Autism Society prioritizes advocating for additional funding for Medicaid-funded home and community-based services.

“Our community-based service system is in crisis. Many Autistic individuals want to live at home or in their community with support, but funding has not kept up with the needs of families,” stated Christopher Banks, President and CEO of the Autism Society of America. “Parents often care for their adult children until they need support themselves.”

The bipartisan Better Care Better Jobs Act, introduced in both the House and Senate, would increase access to personal care services, family supports, community behavioral health services and expand eligibility requirements. It would also facilitate greater coordination with employment, housing and transportation supports. An independent analysis estimates the bill would provide enough funding to enable 3.2 million more individuals to receive services.

The President’s Budget also includes $150 billion over the next decade to improve and expand Medicaid home care services—making it easier for people with disabilities to live, work, and participate in their communities. 

Banks continued, “We applaud President Biden’s actions and urge Congress to pass the Better Care Better Jobs Act to support families with disabilities.”

Next week, the Autism Society is co-sponsoring the Disability Policy Seminar, along with several other major disability organizations. The annual seminar includes a day on the Hill where people with disabilities, family members, and professionals will urge Congress to support the President’s Budget and legislation, such as the Better Care Better Jobs Act, to address waiting lists and raise wages for direct care workers. 

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In this issue of Capitol Connection, find a final notice to register for the Disability Policy Seminar, news about the first-ever sensory-friendly White House Easter Egg Roll, newly introduced legislation, and important congressional hearings, and new resources to help state advocates. New alerts and sample letters are now posted on our Action Center to help educate Members of Congress regarding legislation introduced in Congress. 

 You can still register for the 2023 Disability Policy Seminar. The virtual training takes place on April 24th. Topics include federal funding, community living, health and family supports, education, employment, and housing. If you register, you can also view the recording later. In-person or virtual Hill visits are scheduled for April 27th; however, visits with your Members of Congress can also be scheduled via Zoom or when they are back in their districts at any time. Please use the fact sheets and our Action Center for issue ideas and talking points. 

White House Sensory Friendly Easter Egg Roll 

The Autism Society was able to invite two dozen families from the Washington D.C. area to participate in the first-ever sensory-friendly hour at the annual White House Easter Egg Roll. The special event allowed children with disabilities to enjoy the festivities without the worry of sensory overload. Families enjoyed the shorter lines and reduced noise while they hunted for easter eggs, and rolled eggs down the South Lawn, among other activities.

International Children with Disabilities Protection Act

On March 16th, Senators Menendez (D-NJ) and Moran (R-KS) re-introduced the International Children with Disabilities Protection Act. The bipartisan effort would authorize $10 million annually for five years for an ‘‘International Children with Disabilities Protection Program,” a State Department grant program that would empower organizations advocating for persons with disabilities. The legislation creates a program focused on helping global efforts to combat stigma and discrimination against children with disabilities. It also protects and promotes the development of laws and policies that support the full inclusion of children with disabilities.

Guardianship Bill of Rights Act

On March 30th, Senators Casey (D-PA), Fetterman (D-PA), Warren (D-MA), and Sanders (I-VT) introduced the Guardianship Bill of Rights Act (S. 1148). The bill establishes a Guardianship and Other Protective Arrangements and Supported Decision-Making Council that would be responsible for promoting less restrictive arrangements for people living under or being considered for guardianships. The bill also creates a protection and advocacy agency focused on the rights of people being considered for and living under guardianship. The Senate Special Committee on Aging hosted a hearing to highlight the need for this bill. The hearing can be viewed here. 

Bill to Protect People with Disabilities During Natural Disasters

On March 29th, Senator Casey (D-PA) and Representative Dingell (D-MI-6) introduced the Real Emergency Access for Aging and Disability Inclusion (REAADI) for Disasters Act (S.1049 / H.R. 2371). The READDI for Disaster Act will ensure “there is a strong disability and older adult voice in the preparation, response, recovery, and mitigation of disasters.” Specifically, the REAADI for Disasters Act will establish a National Commission on Disability Rights and Disasters to address the needs of these communities when it comes to disaster preparedness plans; create a national network of centers focused on training, technical assistance, and research, to assist states and territories to better involve and support people with disabilities and older adults; direct the U.S. Department of Justice to review the spending of disaster funds by federal agencies and states; create a competitive grant program to pilot strategies for greater inclusion of people with disabilities and older adults in disaster preparation, response, recovery, and mitigation; and more.

Food Assistance

Rep. Dusty Johnson (R-SD) introduced the America Works Act, a bill to amend the Food and Nutrition Act of 2008 to standardize work requirements for able-bodied adults enrolled in the Supplemental Nutrition Assistance Program (SNAP). Work requirements for SNAP beneficiaries can have harmful effects. These requirements can result in coverage loss due to red tape and administrative burdens. Many beneficiaries may not know about the work requirement or whether it applies to them. Taking coverage away from people not meeting work requirements increases financial hardship and reduces access to food. This can have disastrous consequences for the health and well-being of SNAP beneficiaries and their children. The Center on Budget and Public Policies (CBPP) developed an issue brief for policymakers and advocates. 

Senate Aging Committee on Home and Community-Based Services

The Senate Special Committee held a hearing entitled “Uplifting Families, Workers, and Older Adults: Supporting Communities of Care”. This hearing focused on the critical need for more direct support workers to support home and community-based services. In his opening statement, Chairman Bob Casey discussed how two bills he introduced would help. He said, “The Better Care Better Jobs Act and the HCBS Access Act are complementary. The first one is an investment to create a robust HCBS provider infrastructure for the recruitment and retention of workers. The second bill establishes a permanent funding stream to keep the infrastructure strong and make sure we’re able to continue to pay direct care professionals at a rate that ensures qualified, reliable services and a qualified, reliable workforce into the future.” Witnesses emphasized the growing need for more support workers, testifying that in this decade, a million more new workers will be needed to support the community. In addition, 60 percent of support workers of people with intellectual and developmental disabilities are over the age of 60 years old. The witnesses cited reasons for this crisis to include low wages, high turnover, lack of movement in the field, and Medicaid reimbursement rates. Use the Autism Society Action Center to educate your Members of Congress about these and other bills that support people with Autism.

Hiring and Employment Hearing

The House Committee on Education and the Workforce hosted a hearing entitled “Unleashing America’s Opportunities for Hiring and Employment.” This hearing mostly focused on labor unions, expanding apprenticeship programs and pell grant programs, and reauthorizing the Workforce Innovation and Opportunity Act (WIOA). The Autism Society signed on to a Collaboration to Promote Self-Determination (CPSD) letter to the committee stressing the importance of increasing competitive employment opportunities for individuals with disabilities. 

Pediatric Training

The Accreditation Council for Graduate Medical Education (ACGME), which acts as the governing body of all U.S. medical residency training programs, has proposed a change to their practices to no longer require Developmental-Behavioral Pediatricians to be on the faculty of pediatric residency programs. This proposal would have a significant negative impact on educating residents on how to provide healthcare to children with intellectual and developmental disabilities. The Autism Society of America submitted comments urging ACGME not to waive these requirements. Several affiliates also submitted comments.  

Education

RISE Act

The Respond, Innovate, Succeed, and Empower (RISE) Act was reintroduced in the current Congress by Senators Cassidy (R-LA), Hassan (D-NH), and Todd (R-IN), and Representatives Bonamici (D-OR) and McMorris Rodgers (R-WA). The  RISE Act helps students with disabilities transition to and succeed in college by requiring colleges to accept a student’s IEP, 504 plan, or prior evaluation as sufficient proof of their disability when seeking accommodations, making information about disability services in college more accessible for families and students, and supporting a technical assistance center for college faculty to learn more about the needs of students with disabilities. Please use our action alert to urge your Members of Congress to support this bill to make higher education more accessible. 

Discipline in Schools

In a “Dear Colleague” letter to governors and school leaders, the Secretary of Education Miguel Cardona said that educators should move away from “paddling, spanking or otherwise imposing physical punishment on students.” The use of corporal punishment has declined but still disproportionately impacts students of color and students with disabilities. Twenty-three states still legally allow corporal punishment. The Secretary urges schools to not engage in this practice regardless of whether their state allows it and to instead practice evidence-based strategies, including positive behavioral interventions and supports (PBIS) and multi-tiered systems of support (MTSS). 

Resources

Unwinding of Continuous Enrollment 

The Kaiser Family Foundation (KFF) released a report on the progress and actions states are taking as they unwind the continuous enrollment provisions of Medicaid and CHIP. The report identified 10 key steps states can take as they work through re-enrollment such as taking the entire 12 months to complete the process, improving the amount of renewals without needing enrollee support (ex parte), publishing data on the state website, contacting enrollees when mail is returned, etc. The report has key data on what actions states are taking to ensure an equitable process. KFF also hosted a webinar on the topic where they presented key findings from the report and held a panel discussion with state experts to answer questions. 

The Consortium for Constituents with Disabilities (CCD) sent a letter to the Centers for Medicare and Medicaid Services (CMS) asking CMS to make states’ Renewal Plans public as many states do not have up-to-date information available to the public.  

Self-Determination/HCBS Settings Rule

The Home and Community-Based Services (HCBS) Settings Rule went into effect one month ago. It is important that advocates are aware of the rule and the rights to which individuals are entitled. The Autistic Self Advocacy Network updated its easy-to-read and plain language toolkit to help advocates develop their person-centered planning and advocate for their rights. In addition, the Autism Society led a workshop with the National Association of Councils on Developmental Disabilities, entitled “Creating Community” (a recording will soon be available), and developed a checklist to help advocates ensure their service provider is following the new rule. 

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April 4, 2023, Rockville, MD  –  The Autism Society of America and Chrysler will announce a new long-term partnership initiative that supports the driving needs of individuals with Autism and their loved ones, including through the creation of a new Calm Cabin package that can transform any Chrysler Pacifica into a sensory-supported mobile experience.

On April 5 at the 2023 New York International Auto Show, Chrysler will announce its partnership with the Autism Society, the oldest and largest grassroots Autism organization in the country. The announcement coincides with April’s Autism Acceptance Month, as well as the Autism Society’s fifth annual Celebrate Differences campaign.

Chrysler Pacifica has always served the needs of families with the brand’s purpose of providing calm and bringing harmony to the lives of owners. Chrysler is reinforcing its commitment to providing real solutions for even more families in need. Through its new partnership, the Chrysler brand and the Autism Society will work to make travel more comfortable for all through thoughtful design, support accommodations, educational resources, and local community engagement.

In addition, throughout the month of April, Chrysler will use its platforms to encourage followers of the brand on social media to make donations, spread awareness for early diagnosis of Autism, promote inclusion in the greater community and practice acceptance in everyday life. Donations to the Autism Society can be made at AutismSociety.org/donate.

Chrysler brand will also provide a courtesy one-year loan of three 2023 Chrysler Pacifica Pinnacle vehicles for use by the Autism Society.

“At Chrysler, we believe it’s no longer enough to be ‘aware’ of the millions of people living and thriving with Autism, we must put acceptance into action,” said Chris Feuell, Chrysler brand chief executive officer – Stellantis. “We’re proud to offer life-enriching opportunities for individuals with Autism and their families with initiatives, such as our new Calm Cabin package, that bring a little harmony to people’s lives, whether they are on a long road trip or running a quick errand.”

The Autism Society will help advise the development of Chrysler products and assist with organization-wide inclusion training to build better experiences for the Autism community interacting with dealers across the country.

“The Autism Society of America is proud to partner with Chrysler to create an improved and inclusive driving experience for the Autism community,” said Christopher Banks, president and CEO of the Autism Society of America. “With a trusted partner like Chrysler, our work is amplified as we collaborate to instill inclusive workplace practices, product accommodations and create more opportunities for the Autism community to live fully.”

Chrysler Calm Cabin Package
A 2023 Chrysler Pacifica Limited on display at the New York International Auto Show, featuring branded Autism Society vehicle graphics, will also serve as a showcase for the brand’s new Calm Cabin package, which helps those with Autism feel calm, safe and comfortable.

Available in late spring through Chrysler’s online merchandise retail store, the Chrysler-branded package includes: 

• Seat-back organizer with adjustable straps, five front pockets, interior clear pocket that holds a tablet computer and a black mesh pocket
• Rechargeable, cordless Bluetooth meditative light and sound therapy machine that fits in the center pocket of the seat-back organizer with five LED color modes, four light therapy modes, breathing coach and 15 sound therapy modes
• Comforting seat belt sleeve with soft-touch velvet feel
• Comforting soft-touch travel pillow
• Comforting, seven-layer, 12-pound weighted sensory blanket

Items available as part of the Calm Cabin package will also be available for purchase separately.

As part of the brand’s long-term partnership with the Autism Society, Chrysler will work to identify additional areas where the brand can support and affect meaningful change in the Autism community. In collaboration with its U.S. dealer network, Chrysler will work to roll out dealer-network staff training designed to familiarize dealership employees with the unique needs of individuals and families in the Autism community.

The Chrysler brand’s new initiative with the Autism Society was developed in partnership with Doner, the brand’s creative agency.

Autism and Autos
Autism is the fastest-growing developmental disability in the United States, with one in 36 children receiving a diagnosis, according to the newly released report from the Centers for Disease Control (CDC). In addition to the 5.8 million autistic adults in the U.S., Autism likely touches a vast majority of Americans either through relationships or direct experience, and the support needs across the Autism spectrum are vastly different.

One of the spaces requiring the most support is on the road. Vehicles can be stressful, scary experiences for those with Autism due to an environment that can be overstimulating and uncomfortable. For some, it means every road trip to school, practice, work or on daily errands becomes a difficult, challenging experience.

Autism Society of America
The Autism Society’s mission is to create connections, empowering everyone in the Autism community with the resources needed to live fully. As the nation’s oldest leading grassroots Autism organization, the Autism Society and its approximately 70+ local affiliates serve over half a million members of the Autism community each year. It envisions a world where everyone in the Autism community is connected to the support they need, when they need it – including education, advocacy efforts, and supports and services throughout the lifespan. During Autism Acceptance Month, the Autism Society has a goal to fundraise $350,000 to expand acceptance in practice for the Autism community. For more information, go to www.autismsociety.org, Facebook, Instagram or Twitter.
 
Chrysler Brand
The Chrysler brand has delighted customers with distinctive designs, craftsmanship, advanced innovation and technology since the company was founded in 1925. The Chrysler Pacifica continues to reinvent the minivan, a segment Chrysler invented nearly 40 years ago. Pacifica delivers an unprecedented level of functionality, versatility, technology and bold styling along with the most standard safety features in the industry and most advanced available all-wheel-drive system in its class. The available innovative plug-in hybrid powertrain takes this revolutionary vehicle a step further. It’s the first electrified vehicle in the minivan segment and achieves more than 80 MPGe in electric-only mode, has an all-electric range of more than 30 miles and a total range of more than 500 miles. Chrysler Pacifica is also the most awarded minivan over the last six years with more than 170 honors and industry accolades since its introduction as a minivan. The Chrysler 300 lineup delivers on the brand’s promise of accessible luxury, with iconic and elegant design, world-class performance, efficiency and quality. Chrysler is part of the portfolio of brands offered by leading global automaker and mobility provider Stellantis. For more information regarding Stellantis (NYSE: STLA), please visit www.stellantis.com.

Follow Chrysler and company news and video on:
Company blog: http://blog.stellantisnorthamerica.com
Media website: http://media.stellantisnorthamerica.com
Chrysler brand: www.chrysler.com
Facebook: www.facebook.com/chrysler
Instagram: https://www.instagram.com/chrysler 
Twitter: www.twitter.com/chrysler or @StellantisNA
YouTube: www.youtube.com/chrysler or https://www.youtube.com/StellantisNA 

For more information, please visit the Stellantis media site for North America at https://media.stellantisnorthamerica.com.

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As part of our partnership, Pura Vida is launching two new custom styles using our new brand colors. Each purchase from our Autism Society bracelet collection will donate 5% of the purchase price to support our mission of connecting Autistic individuals and their families to education, resources, and advocacy that empowers the community.

These bracelets are now available to order online through the Pura Vida website, and their in-store locations. Shop our Autism Society Style Pack bracelets and our original Autism Society bracelet today. Whether you prefer to browse from the comfort of your own home or enjoy the in-store shopping experience, you can easily get your hands on these stylish accessories.

If you live near one of Pura Vida’s store locations, we invite you to pay a visit to a nearby Pura Vida store. In select locations including Pura Vida’s San Diego, Irvine, Myrtle Beach, and Gilbert stores, you can contribute to our acceptance wall, learn more about your local Autism Society affiliates, and even receive some exciting swag to take home with you. Pura Vida is also hosting a week-long charity donation with 5% of every purchase bought through influencers, which will go to the Autism Society of America from Thursday, March 30th – Wednesday, April 5th. 

By purchasing an Autism Acceptance bracelet, you can join us in our efforts to #CelebrateDifferences and work towards a more inclusive world for everyone. Order yours today as they are likely to sell out!

Learn more about our work with Pura Vida and our other corporate partners.

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Rockville, MD – The Autism Society of America secured a mission-critical grant from the Aging and Disability Vaccination Collaborative (ADVC) to expand its Vaccine Education Initiative (VEI) – one of the many programs the organization promotes for the overall health and well-being for individuals with Autism. 

Healthcare inequities are seen across disability communities, including Autism, and are exaggerated by social and economic factors. These inequities can result in differences in length and quality of life, disease rates, access to treatment, disability, and death. Recent data shows that people with Autism have barriers to accessible healthcare, an increased risk for comorbidities, and have more anxiety and depression than people without disabilities. 

“Health Equity is the foundation for a healthy life,” said Christopher Banks, President and CEO of the Autism Society of America. “It addresses the range of life-sustaining issues that are the social determinants of health, and are often lacking or inaccessible for Autistic Americans and other underserved or marginalized groups.”

Vaccine hesitancy has long been an issue within the Autism community, and has been perpetuated by unsupportive provider settings, unprepared healthcare providers, and trauma-based experiences. With training for healthcare professionals and systemic changes, providers can use evidence-based methods to better support the Autism community. 

The new grant from the Aging and Disability Vaccination Collaborative – an initiative funded by the U.S. Administration for Community Living to provide outreach, technical assistance, and support to promote vaccination uptake – will help the Autism Society substantially expand the VEI. This ensures more people will receive factual, unbiased information about vaccines, safety, and public health, as well as expanded access to supported vaccine clinics and trained healthcare providers.

“The Autism Society has been pioneering strategies to help families and individuals with Autism get vaccinated since it can be especially stressful and upsetting for people with Autism,” said Dr. Kelly Moore, President and CEO of Immunize.org. “They have some simple, low-cost ideas like putting on headphones, listening to your favorite music, or using a “shot blocker” to make the shot hurt less.”

Other areas of health equity in which the Autism Society is working include employment, mental health, suicide prevention, and home and community-based services. During Autism Acceptance Month, the organization will be highlighting its work and impact to ensure accessible experiences in healthcare and other social determinants of health.

About the Autism Society of America:

The Autism Society’s mission is to create connections, empowering everyone in the Autism community with the resources needed to live fully. As the nation’s oldest leading grassroots Autism organization, the Autism Society and its approximately 70+ local affiliates serve over half a million members of the Autism community each year. It envisions a world where everyone in the Autism community is connected to the support they need, when they need it – including education, advocacy efforts, and supports and services throughout the lifespan. During Autism Acceptance Month, the Autism Society has a goal to fundraise $350,000 to expand acceptance in practice for the Autism community. For more information, go to www.autismsociety.org, Facebook, Instagram or Twitter. 

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Rockville, MD, March 29, 2023 – Goodnites, the #1 bedwetting underwear¹ brand, announced a new partnership with the Autism Society of America, America’s largest and oldest grassroots Autism organization, to educate, support, and provide solutions for families of children with Autism who need a longer-term bedwetting solution.

Since inventing the absorbent bedwetting underwear category in 1994, Goodnites has been committed to empowering users to have a dry night’s sleep and wake up awesome! Its bedwetting underwear is designed to provide children ages 3 to 17 a dry night’s sleep with 35% fewer leaks². While bedwetting is a common occurrence among most children, children with Autism and/or ADHD may face a longer experience with nocturnal enuresis, commonly known as bedwetting.

In honor of Autism Acceptance Month this April, Goodnites will donate $150,000 to the Autism Society of America to support education and community efforts throughout 2023. As part of the programming, the brand is also unveiling new proprietary research illustrating the impact of bedwetting on families of children with ADHD and/or Autism, sharing awareness-driving content across digital channels, and amplifying influential voices in the neurodivergent and parenting space to help reduce the shame and stigma around bedwetting through education.

Driven by insights, Goodnites is committed to supporting this underserved group by combating the bedwetting stigma and giving parents and children the comfort that they are not alone. Through an ongoing partnership with the Autism Society of America that extends through 2023, the two organizations will support the community through educational resources, national and local community events, and advocacy. Designed with these families’ needs in mind, Goodnites will unveil a resource hub later this year to provide free access to bedwetting education tailored to the Autism and ADHD communities with contributions from the Autism Society of America.

In January 2023, Goodnites conducted a survey among 1,000 U.S. parents of children with Autism and/or ADHD, ages 3 to 17. The survey uncovered the physical, emotional, relational, and mental impact that bedwetting has on families of children with Autism and/or ADHD. The study found:

• Three-fifths of parents of children with Autism and/or ADHD who experience bedwetting express increased feelings of anxiety (60%) and helplessness (58%).
• About two-fifths of these parents also state that bedwetting has made their child more anxious (41%) and lowered their child’s self-esteem (38%).
• Half (50%) of parents say their child’s bedwetting has caused them to feel like a failure as a parent and roughly half (48%) of parents feel bedwetting has led to concerns that others will judge them.
• Participants expressed that they feel friends (71%) and family (65%) don’t understand the challenges of parenting children with Autism and/or ADHD.

“The Goodnites brand is proud to stand up to the stigma and shame wrapped up in wet sheets and begin a conversation to help parents of children with Autism and ADHD find answers and begin a conversation to help parents of children with Autism and ADHD find answers and solutions to help their kids wake up dry for a better start to the day for the whole family,” said Aaron Gretebeck, Kimberly-Clark’s North American Vice Present of Goodnites. “We are proud to partner with the Autism Society of America to fulfill the shared goal of empowering families of neurodivergent children with educational resources and meaningful support.”

To better serve the needs of children who experience longer-term bedwetting and provide size-inclusive products with outstanding comfort and fit, Goodnites launched a dedicated XL size in 2021. Following this launch, consumer data showed that the second largest group of XL buyers were parents of children with disabilities. One in six children experiences bedwetting, and of those who experience bedwetting, one in 10 has a disability, with Autism and ADHD being the most prevalent³. While bedwetting is a common occurrence among many children, it can have a greater impact on families of children with Autism and/or ADHD who experience additional physical, emotional, relational, and mental tolls on their everyday lives.

“Goodnites is addressing challenges faced by many in the Autism community with higher support needs, that are not often talked about,” said Christopher Banks, President and CEO of the Autism Society of America. “The resources this partnership creates will serve as a starting point for conversations that will help break the stigma in a community that can often feel isolated and underserved.”

Visit Goodnites.com to learn more, find the right product for your family’s unique needs, and discover how awesome days start with Goodnites. Follow @goodnites on Instagram, @goodnites on Facebook, @goodnitesbrand on TikTok, @autismsociety on Twitter, @autism society on Instagram, and @autismsociety on Facebook to learn more.

About Kimberly-Clark

Kimberly-Clark (NYSE: KMB) and its trusted brands are an indispensable part of life for people in more than 175 countries. Fueled by ingenuity, creativity, and an understanding of people’s most essential needs, we’re committed to our purpose of Better Care for a Better World. Our portfolio of brands, including Huggies, Kleenex, Scott, Kotex, Cottonelle, Poise, Depend, Andrex, Pull-Ups, GoodNites, Intimus, Neve, Plenitud, Sweety, Softex, Viva and WypAll, holds No. 1 or No. 2 share position in approximately 80 countries. We use sustainable practices that support a healthy planet, build strong communities, and ensure our business thrives for decades to come. To keep up with the latest news and to learn more about the company’s 150-year history of innovation, visit kimberly-clark.com.

About the Autism Society of America

The Autism Society’s mission is to create connections, empowering everyone in the Autism community with the resources needed to live fully. As the nation’s oldest leading grassroots Autism organization, the Autism Society and its approximately 70+ local affiliates serve over half a million members of the Autism community each year. It envisions a world where everyone in the Autism community is connected to the support they need, when they need it – including education, advocacy efforts, and supports and services throughout the lifespan. During Autism Acceptance Month, the Autism Society has a goal to fundraise $350,000 to expand acceptance in practice for the Autism community. For more information, go to www.autismsociety.org, Facebook, Instagram or Twitter.         

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 1. Youth Pant Category Share Data

 2. vs. Boy Large vs. Ninjamas Boy Large

 3. Goodnites Bedwetting Diary Study, ©Burke, Inc. 2021

The post Press Release: Goodnites® Announces Partnership with the Autism Society of America to Raise Awareness and Provide Solutions for Bedwetting Needs of Families with Neurodivergent Children appeared first on Autism Society.

Rockville, MD – This April, the Autism Society of America is highlighting partners who are demonstrating acceptance in action for Autism Acceptance Month. The organization’s newest partnership is with Goodnites, the #1 bedwetting underwear brand*. Goodnites is donating $150,000 to the Autism Society of America to support education and community efforts to empower the Autism community.

According to a study conducted by Goodnites**, 1 in 10 children who struggle with bedwetting has a disability – including Autism and/or ADHD. As a size-inclusive bedwetting underwear, Goodnites provides a solution to the long-term needs of many children and adolescents in the neurodivergent community, empowering them to wake up dry. This Autism Acceptance Month, the Autism Society and Goodnites are working together to raise awareness for the needs of families and individuals who struggle with nocturnal enuresis, commonly known as bedwetting, while destigmatizing this common challenge.

“Goodnites is dedicated to supporting under-represented families of children with Autism and ADHD who are in need of a longer-term bedwetting solution,” said Aaron Gretebeck, Kimberly-Clark’s North American Vice President of Goodnites. “Our partnership with the Autism Society allows us to support the Autism community by providing tangible solutions through educational resources, destigmatizing bedwetting, and giving parents and children the comfort that they are not alone.”

Corporations have increasingly acknowledged that they have critical roles to play in creating a more accepting and inclusive culture for individuals with Autism, among other developmental disabilities and physical differences. The Autism Society of America has many partnerships with companies looking to support the wider community with tools, resources, and products that serve Autistic individuals and their loved ones, as well as enhance their internal employment and cultural practices. 

For employers, acceptance is an invaluable practice for the 5.8 million Autistic adults in the United States. At more than 70%, the underemployment and unemployment rate for Autistic individuals remains unacceptably high. The Autism Society believes that with appropriate support, and matching an individual’s strengths and abilities, employment is attainable for the majority of Autistic individuals who want to work.

Recently, the Autism Society received a $250,000 grant from the Make Waves Family Foundation to prioritize its employment initiative. This strategic initiative aims to expand employment opportunities and outcomes for Autistic individuals while addressing systemic barriers to employment.

Additionally, the Autism Society of America formalized a partnership with Mentra, a neurodiversity employment network that matches neurodivergent professionals with meaningful careers; together, the collaboration will seek to more effectively match Autistic job-seekers with job opportunities, improve career outcomes, and assist the Autism Society organizationally as it expands its own team.

“Through our partnerships, the Autism Society of America recognizes the individual needs and experiences of the Autism community from childhood, through the school years, to meaningful employment, and throughout the lifespan,” said Christopher Banks, President and CEO of the Autism Society of America. “We are honored to partner with these corporate leaders and foundations to advance opportunities for the Autism community to live fully.

Other highlighted partnerships include:

Collaboration with Nickelodeon 

The ongoing collaboration between Nickelodeon and the Autism Society includes education, content creation, and learning resources for Autistic children. This partnership continues to produce meaningful content like its Autism Acceptance Month guide, back-to-school resource pack, and Autism storylines in Nick media. 

Using its platform to connect with families, Nickelodeon will help amplify critical information for those looking for resources and support. Nickelodeon also continues to develop DIY sensory activities for children and families. It will be celebrating Autism Acceptance Month on social media and will be connecting with neurodivergent talent to highlight their stories throughout the month of April. 

“Nickelodeon is committed to serving all learners as a family and kid-first company,” said Jean Margaret Smith, Senior Vice President, Public Affairs, Nickelodeon. “Our partnership with the Autism Society helps us promote inclusion and acceptance that empowers kids in the Autism community.” 

Pura Vida

This April, long-time partner, Pura Vida is releasing two new Autism Acceptance jewelry styles, with 5% of every purchase benefitting the Autism Society of America. Additionally, Pura Vida will be using social media, in-store activations, and event support with local affiliates to amplify the message of Autism Acceptance while directing the public to tools and resources for more information. 

“We are committed to creating products and partnerships that inspire positivity and give back,” said Mikala Andrea, who oversees Charity Partnerships at Pura Vida. “Pura Vida is proud to continue and expand our relationship with the Autism Society of America to encourage acceptance every day.”

About Autism Society of America

The Autism Society’s mission is to create connections, empowering everyone in the Autism community with the resources needed to live fully. As the nation’s oldest leading grassroots Autism organization, the Autism Society and its approximately 70+ local affiliates serve over half a million members of the Autism community each year. It envisions a world where everyone in the Autism community is connected to the support they need when they need it – including education, advocacy efforts, and supports and services throughout the lifespan. During Autism Acceptance Month, the Autism Society has a goal to fundraise $350,000 to expand acceptance in practice for the Autism community. For more information, go to www.AutismSociety.org, Facebook, Instagram, or Twitter.   

Contact:

Nathan Wilson
NathanW@strategies360.com

Footnotes:
*Youth Pant Category Share Data
** Goodnites Bedwetting Diary Study, Burke®, Inc. 2021

The post Press Release: The Autism Society Announces New Corporate Partnership with Goodnites®, Among Others, Ahead of April’s Autism Acceptance Month appeared first on Autism Society.

Rockville, MD, March 23, 2023 – The Centers for Disease Control and Prevention (CDC) has released two new reports from the Autism and Developmental Disabilities Monitoring (ADDM) network detailing prevalence rates, characteristics, and screening and diagnostic information. As a CDC partner, the Autism Society of America routinely reviews these reports to disseminate information, educate the greater community, and advocate for critical policy changes that ensure everyone in the Autism community has access to the resources they need to live fully. Today, the CDC reports a continued increase in the prevalence rate with one in 36 children receiving an Autism diagnosis.

Increasing prevalence estimates continue to underscore the urgent need for equitable supports and services in the Autism community. The increase to 1 in 36 eight-year-olds being diagnosed from the 2021 report of 1 in 44 eight-year-olds, can be attributed to a variety of factors, including an increased rate of diagnosis itself. This means that while diagnostic screening and identification are improving in some ways, the prevalence rate is also increasing.

The early identification report demonstrates that for the first time, the percentage of 8-year-old Asian or Pacific Islander, Hispanic, and Black children identified with Autism was higher than among 8-year-old White children. This change effectively closes the racial and ethnic gap which was observed and reported in previous ADDM reports. These shifts may reflect improved screening, awareness, and access to services among historically underserved groups.  

“The Autism Society and its network of affiliates have been working to close the racial disparity gap in early screening and diagnosis through education, resource development, and community programming to better support these underserved populations,” states Christopher Banks, President and CEO of the Autism Society of America. “It’s important to recognize this improvement, however, the increased prevalence rates means we urgently need increased access to quality supports and services at the federal and state level.”

While there have been improvements in early Autism identification over time, the COVID-19 pandemic has greatly disrupted progress to have an overall increase in screening efforts. The data reflects that screening of four-year-olds was initially on-track to show increased results of early detection, but was abruptly halted in March 2020 and has struggled to recover; this has resulted in long waitlists to receive timely screening and diagnosis, as well as delaying the opportunity to connect to essential early interventions and supports.

Children who receive an Autism diagnosis by age 4, are more likely to receive services that lead to improved long-term outcomes. This confirms the need to urgently increase our capability to screen and effectively diagnose children as early as possible; the Autism Society recommends that children be screened at least three times before age three (9, 18, and 24 or 30 months), so that they can be referred for services to have the best chance of success to live fully. 

The Autism Society of America, like the CDC, supports early identification as one of the most important tools communities have in helping to make a difference in the lives of children with Autism. The CDC’s Learn the Signs. Act Early. program promotes early identification by providing parents, childcare professionals, and healthcare providers free resources, in English and Spanish, for monitoring children’s development. Additionally, the Autism Society has updated resources as part of our 2023 Autism Acceptance Month campaign that provides digestible facts and statistics about Autism.

Established in 2000, the ADDM Network is the only network to track the number and characteristics of Autistic children and other developmental disabilities in multiple communities throughout the United States. This data provides important information from which researchers, policymakers, and service providers are able to make important decisions about how to best serve these individuals and their families. However, it is important to note that these estimates are based on 8-year-old children living in 11 community sites, and do not reflect the entire population of children in the United States. The Autism Society has continuously urged the CDC to increase its population data by expanding the number of sites and diversity of populations. Learn more about the ADDM sites here. 

See the full prevalence and early identification reports published in the Morbidity and Mortality Weekly Report on the CDC website. 

Visit our website to learn more about Autism, and screening and diagnosis. Connect to professional Information and Referral Specialists by contacting our National Helpline.

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